‘Short breaks for families caring for a child who may not reach adulthood provide vital respite.’
If you’d like to help, we have charity products coming out in the month of June, or you can hold a Butterfly Tea Party to help raise much needed funds.
Short breaks for families caring for a child who may not reach adulthood mean more than just a holiday – they provide vital respite and help families to cope with the pressure of providing round-the-clock care for their children. These families rely on frequent short breaks with specialist care, provided by a range of organisations including children’s hospices, to enable them to spend time as a family – recharging batteries, making memories with the seriously ill child and spending quality time with brothers and sisters. However, too few local authorities fund these crucial services for children with complex conditions, meaning families struggle and will often need more expensive emergency support from health or social care.
This Children’s Hospice Week (11-17 May) we are calling on the new government to ensure that there is fair and sustainable funding for short breaks through a new, ringfenced fund, allocated to local authorities in England. Without this, families – many of whom are already at breaking point – risk losing out on the support they need.
Barbara Gelb Chief executive, Together for Short Lives Peter Branson Chief executive, Forget Me Not Children’s Hospice David Burland Chief executive, Shooting Star Chase Graham Butland Chief executive, East Anglia Children’s Hospices Ryan Campbell Chief executive, Demelza Hospice Care for Children Andy Campbell Chief executive, Rainbows Hospice for Children and Young People Claire Cardy Chief executive, Ellenor Georgina Cox Chief executive, Derian House Children’s Hospice Clare Edwards Interim chief executive, Helen and Douglas House Martin Edwards Chief executive, Julia’s House, the Dorset and Wiltshire Children’s Hospices James Ellam Chief executive, St Oswald’s Hospice Peter Ellis Chief executive, Richard House Children’s Hospice Eddie Farwell Chief executive, Children’s Hospice South West Andy Goldsmith Chief executive, Hope House Children’s Hospices David Houston Chief executive, Trinity Hospice and Palliative Care Services Mike Keel Chief executive, Keech Hospice Care Graham Leggatt-Chidgey Chief executive, Butterwick Hospice Care Hugh Lowson Chief executive, Chestnut Tree House Children’s Hospice Mike McDonald Chief executive, The Donna Louise Children’s Hospice Angela Monaghan Chief executive, Martin House Children’s Hospice Joanne Page General manager, James Hopkins Trust Mike Palfreman Chief executive, Haven House David Pastor Chief executive, Claire House Children’s Hospice Jenny Provin Chief executive, Rennie Grove Hospice Care Claire Rintoul Chief executive, Bluebell Wood Children’s Hospice Chris Robinson Chief executive, Naomi House Children’s Hospice Andy Smith Chief executive, Havens Hospices Joan Stainsby Executive trustee, Zoë’s Place Baby Hospice David Strudley Chief executive, Acorns Children’s Hospice